About Sucraid®
Sucraid® is the only FDA-approved enzyme replacement therapy for the treatment of CSID.
About CSID
Congenital Sucrase-Isomaltase Deficiency (CSID), also known as Genetic Sucrase-Isomaltase Deficiency (GSID).
Patient Assistance
SucraidASSIST™ is a comprehensive support program that provides information and support.
What is Congenital Sucrase-Isomaltase Deficiency?
CSID is a disorder that reduces the effectiveness of enzymes that digest carbohydrates (sugar and starch). Congenital Sucrase-Isomaltase Deficiency, also known as Genetic Sucrase-Isomaltase Deficiency (GSID), is an inherited disorder that causes these digestive enzymes either to be missing or to not work as well.
Download a CSID Doctor Discussion Guide
Talking to your doctor about your CSID symptoms — especially when they involve bloating, gassiness, and diarrhea — might seem embarrassing. But sharing these details and your medical history helps your doctor make a diagnosis.
Just as your doctor has questions for you, it’s natural for you to have questions for your doctor. Using a tool like the CSID Doctor Discussion Guide helps you organize your personal information and any questions you may have so that you are prepared for your appointment.
Just click on the bar below and download the discussion guide, fill it out, and share the information with your doctor during your next visit.
Enter your email so that we may keep you up to date with the latest information about disease and drug therapy.
Download a CSID Doctor Discussion Guide
Talking to your doctor about your CSID symptoms — especially when they involve bloating, gassiness, and diarrhea — might seem embarrassing. But sharing these details and your medical history helps your doctor make a diagnosis.
Just as your doctor has questions for you, it’s natural for you to have questions for your doctor. Using a tool like the CSID Doctor Discussion Guide helps you organize your personal information and any questions you may have, so that you are prepared for your appointment.
Just click on the bar below and download the discussion guide, fill it out, and share the information with your doctor during your next visit.
Enter your email so that we may keep you up to date with the latest information about disease and drug therapy.
See how Sucraid® works. Watch the Video
What is Sucraid®?
Sucraid® is an FDA-approved drug for the treatment of genetically determined sucrase deficiency, which is part of Congenital Sucrase-Isomaltase Deficiency (CSID). Sucraid® is an enzyme replacement therapy, providing a substitute for the sucrase enzyme in the small intestine that is missing or not working in people who have CSID. CSID may also be called a form of Sucrose Intolerance, carbohydrate malabsorption or intolerance or Genetic Sucrase-Isomaltase Deficiency (GSID).
Complete Resolution
Patients who became asymptomatic* with Sucraid® in clinical trials.1
*Study patients, who were diagnosed with CSID and took Sucraid® with each meal, were considered asymptomatic if they reported no GI symptoms for 7 of the 10 study days (N=26).
1 Treem WR, McAdams L, Standford L, Kastoff G, Justinich C, Hyams J. Sacrosidase Therapy for Congenital Sucrase-Isomaltase Deficiency. J Pediatr Gastroenterol Nutr. 1999;28(2):137-42. doi:10.1097/00005176-199902000-00008
Complete Resolution
Patients who became asymptomatic* with Sucraid® in clinical trials.1
*Study patients, who were diagnosed with CSID and took Sucraid® with each meal, were considered asymptomatic if they reported no GI symptoms for 7 of the 10 study days (N=26).
1 Treem WR, McAdams L, Standford L, Kastoff G, Justinich C, Hyams J. Sacrosidase Therapy for Congenital Sucrase-Isomaltase Deficiency. J Pediatr Gastroenterol Nutr. 1999;28(2):137-42. doi:10.1097/00005176-199902000-00008
Sucraid® is a drug that is only available by prescription, but a prescription for Sucraid® cannot be filled by your corner drugstore. The only way to get a Sucraid® prescription filled is through the specialty pharmacy. Call the specialty pharmacy at 1-833-800-0122.
If your doctor has prescribed Sucraid® for you, it is either because you have been diagnosed with Congenital Sucrase-Isomaltase Deficiency (CSID) or because your doctor suspects the reason why you have frequent GI symptoms is because the sucrase-isomaltase enzymes in your small intestine are not working. If that is the case, your doctor wishes to determine if a trial of Sucraid® therapy would help relieve some of your GI symptoms.
- For patients with a body weight of up to 33 lb (15 kg), Sucraid® comes in a translucent plastic bottle containing approximately 118 mL of concentrated solution, packaged with two bottles per box
- Each mL of solution contains 8,500 international units (IU) of sacrosidase
- A 1-mL measuring scoop is provided with each box of Sucraid® bottles
- For patients with a body weight over 33 lb, Sucraid® 2 mL is supplied in single-use containers packaged in a foil pouch
- Each foil pouch includes five Sucraid® single-use containers
Patient Stories
For us, Sucraid® is the difference between strict diet adherence and a more normal diet. Sucraid® means more freedom of choice for us.”
Aileen, Caregiver for Patient Treated With Sucraid®
These statements reflect individual experiences and should not be used as a substitute for talking with your doctor about whether Sucraid® is right for you. Your doctor can discuss the benefits and risks with you. Each patient experience is unique and QOL Medical, LLC does not provide any warranty or guarantee as to the response a patient will have to Sucraid®.
Insights
Watch Now
Behind the Mystery: Rare & Genetic Diseases is a special video on the balancing act of treating individuals who have CSID. This is an interview with Dr. William Treem, a pediatric gastroenterologist who has studied and treated patients with CSID for years.
QOL Medical contributed financially to the production and air time of this video, which appeared on the Lifetime Television Network. Dr. William Treem, who appears in this video, was a paid consultant of QOL Medical and was compensated for his time participating in this video. Please see the indication and important safety information for Sucraid® below.