Peer Support Coaches
Coaches Provide Information and Advice on Living with CSID
Because Congenital Sucrase-Isomaltase Deficiency (CSID) is a rare disorder, many affected individuals and their caregivers do not have the opportunity to speak with others going through the same experience.
In This Section
To address this need for community support, QOL Medical and One Patient Services offer access to peer coaches, who are fellow patients, parents, or caregivers of a child with CSID.
Peer coaches are a wonderful resource for other affected individuals and their caregivers to draw upon, especially during the early stages following diagnosis.
The diagnosis of CSID may evoke many emotions, questions, and concerns. Having an experienced patient or caregiver to speak with can be extremely valuable to patients.
Peer coaches offer the following support services:
- Provide empathy and psychosocial support from an experienced patient/caregiver perspective
- Share tips on coping and daily living with CSID
- Introduce patients and caregivers to online support communities
- Direct patients and caregivers to credible disease information and resources, such as SucraidASSIST.com