Peer Support Coaches
Coaches Provide Information and Advice on Living with CSID
Patients with rare disorders and their caregivers often feel isolated in managing their condition, because it is difficult to find others within their community that really understand their situation. Because Congenital Sucrase-Isomaltase Deficiency (CSID) is a rare disorder, many patients and caregivers do not have the opportunity to share their experiences with other patients and caregivers.
In This Section
To address this need for community and support, SucraidASSIST offers peer coaches.
A peer coach is an adult patient, parent, or caregiver of a child with CSID who volunteers to be a resource to other patients.
The diagnosis of CSID may evoke many emotions, questions, or concerns in patients. Having an experienced patient/caregiver to speak with can be extremely valuable and may help alleviate some of the anxiety that may accompany a new diagnosis. Peer coaches are an important component of SucraidASSIST, QOL Medical’s comprehensive patient support program.
Peer coaches offer the following support services:
- Provide empathy and psychosocial support from an experienced patient/caregiver perspective
- Share tips on coping and daily living with CSID
- Introduce patients and caregivers to online support communities
- Direct patients and caregivers to credible disease information and resources, such as SucraidASSIST.com